Awareness. Support. Hope. Providing critical visibility, medical mobilization and family guidance for rare disease battles.
SMA Awareness & Support
Awareness. Support. Hope.
Nai Raah Foundation actively supports individuals and families affected by Spinal Muscular Atrophy (SMA) through awareness initiatives, fundraising campaigns and support efforts aimed at helping families access critical treatment.
SMA can place an enormous emotional and financial burden on families. Through awareness and community support, we aim to bring greater visibility to the challenges faced by SMA patients and help families navigate difficult circumstances.
Prateek Kwatra
✓“Our Founder, Prateek Kwatra, is widely recognized as the “SMA Man of India” for his dedicated efforts towards supporting the SMA community, raising rare disease awareness, and uplifting vulnerable lives across India.”
Spinal Muscular Atrophy (SMA) is a severe genetic neuromuscular disorder that robs infants and young children of basic motor functions — breathing, swallowing, and crawling.
SMA gene therapy medications cost between ₹9 Crores to ₹17 Crores, placing an impossible burden on ordinary households without crowdfunded community power.
Early diagnosis and prompt therapeutic intervention before progressive motor neuron loss is critical to save a child's mobility and survival.
We stand shoulder-to-shoulder with parents, navigating clinical permissions, hospital liaison, fundraising campaigns, and emotional endurance.
Every rupee pooled and every share across WhatsApp brings an infant one step closer to life-saving treatment.
Awareness is also support. Share the story. Stand with the SMA community.
